Friday, March 04, 2016

Learning to Live With Alzheimers



After the shock of realizing that my wife of 52 years no longer recognized or remembered me I was at a total loss. Should I go along with her delusion or should I argue and try to prove who I really was. Arguing proved to be pointless as she couldn't be convinced that I was anything more than a stranger. I didn't think that it could get much worse than that but I was wrong.
We got along fairly well for a week or so (as long as I didn't try to hug her or show any affection,) and one morning I asked Carol if she wanted to go to the grocery store in Newport with me or stay at home. She said she would rather stay at home with the doggies.
When I got back home with a car load of groceries and tried to take an armload into the house she met me at the door and said, “I'm not letting you in, you can't stay here!”
“I live here!” I said. I couldn't think of anything else to say, except, “At least let me bring in the groceries!” Reluctantly, she let me in, and while I unloaded the car and put the groceries away she shouted that I was not her husband and that as soon as I was done I had to leave.
She was sobbing while I got on the phone and left a message on our son Brad's answering service asking if he and his wife Donna would come over to help. By the time they arrived Carol had calmed down some and between the two of them talking to her she finally relented and agreed to let Brad take her to the emergency room at the hospital in Newport.
Later that day Brad called and told me that they diagnosed her having a urinary tract infection which for some reason, is known to cause big problems, including anxiety attacks in Alzheimer's patients. Brad brought her home with a prescription for Cipro, an antibiotic.
Several days later the four of us went to our family doctor and he prescribed some medicine to help ease Carol's anxiety and panic attacks and hopefully help with her memory loss. We're getting along pretty well now, I guess she thinks of me as some kind of family friend and we seem to do OK with that unspoken understanding, but I sure do miss those good morning and goodnight hugs and kisses.
I hope her memory of me comes back. I keep playing oldies on the boom box and looking at family pictures with her but for now I just have to nod when she asks me if I ever met her and Bob's son, Rick. I think to myself, yes honey, I watched him being born. Dammit! I'm Bob!

Monday, February 15, 2016

Legend


This morning I had to call 911.
Carol was having a bad anxiety attack, and I couldn't help her. She wanted “to go home to her family” and take the dogs with her. She was sobbing and having trouble breathing.
When the ambulance arrived and they were checking her vitals one of them said,”Oh my God! Do you guys know who this is? She's a central coast legend! She logged more volunteer hours than anyone!” He looked at her and asked, “Do you remember me? You helped break me in on driving the ambulance.” When I saw her face light up I almost cried.
In a few minutes it was old home week and Carol's anxiety slipped away as they remembered people they had worked with and where they were now.
Her vital signs had returned to normal and the head paramedic said that he didn't think that a trip to the hospital was necessary. I agreed.
After they left I asked Carol where her award certificates were. She found them in a paper grocery bag behind a chair in the living room. We sat down on the couch and looked at them. There was a whole stack of awards for 3,000 hours of volunteer service for a year. Only one of them was framed, and I leaned it up on a shelf where everyone could see it.

Saturday, February 13, 2016

Alzheimer's Disease


Alzheimer's

We started out calling Carol's constant misplacing and losing things “Forgetfulness,” or the then humorous, CRS (Can't Remember Shit!) or CRAFT (Can't Remember A Frigging Thing!) As it got worse, we got serious and called it “Short Term Memory Loss.”
A trip to a Corvallis neurologist resulted in a diagnosis of “Progressive memory loss and Dementia” and a recommendation to the DMV to revoke her driver's license. (Which they did.)
For a few years we coasted along, hoping that the symptoms wouldn't get any worse, but there was always that Gorilla hiding in the shadows called Alzheimer's Disease. It wasn't so bad, going on treasure hunts every day looking for things that Carol lost or misplaced. I had a checklist of likely places to look, no matter what we were looking for: Refrigerator, freezer, microwave, couch cushions, under her pillow, trash cans, it was almost a game.
Then the Gorilla came out and punched me right in the heart.
It was a normal evening. We'd had our once a month lunch at the Salty Dawg and we were at home watching TV when Carol looked at me and said, “Who are you? I don't remember you!”
At first I thought she was kidding but when I saw the look on her face, I knew.
I knew.
What do you do?” she asked.
I, I'm retired.” I stammered, at a loss for words.
Huh, so is Bob,” she said.
I'm Bob!” I answered, “We've been married for 52 years!”
I'll never forget the blank look on her face when she looked at me.
I was a stranger.

The Last Walk



I enjoy walking...always have. Especially on a beautiful day like this.

They told me that if I wanted to walk, I'd just have to go up and down the hallways. That's not the same thing, so today I left.

    This noisy highway isn't exactly my favorite place, but maybe I can find a more peaceful side road. Just because my memory fails me every now and then, they put me in that “home.” I hate it. The doctors say I have Alzheimer's and that I can't live by myself at my house any more. I was doing just fine until I got lost that time.

    Say, this gravel road is much nicer, I must have turned off the highway without realizing it. I can smell newly mowed grass, wood smoke and someone's backyard barbecue. The houses are farther apart now, and I'm getting into farm country.

    There's a white horse!

Zitz!

That's what we kids used to say whenever we saw a white horse while we were out driving in my dad's old Ford. And we used to read the Burma Shave signs, too.

THE BEARDED LADY
TRIED A JAR
NOW SHE'S
A FAMOUS MOVIE STAR
BURMA-SHAVE

How can they say my memory's gone if I can remember things like that!

     This is the one of the most enjoyable walks that I can remember, it's warm, a nice cool breeze is blowing through the trees, and my arthritis hasn't bothered me at all. In fact, I feel better than I have in years. I think I could walk forever.

     Sometimes when people come to visit me at the home and I don't know who they are, they get upset and cry. I try to remember them, but to me they're strangers. Other times, I remember my family when they visit. The doctors say I'm getting worse, but I don't believe them. No matter what they say, I can still remember lot's of things, like the music from the ice cream truck when it came around the corner of our block when I was a little kid, and my first kiss.

    I must have taken another side road while I was day dreaming, and this one is even prettier. There's grass growing between the tire tracks and the trees on the sides are almost touching overhead. It looks like the road ends here in a grassy turn-around. The moving sunlight and shadows on the ground are so mesmerizing that I think I'll sit against this tree and rest for a while. There are birds singing melodies that I've never heard before, or maybe I just don't remember them. It's cooling off as evening falls, but I'm warm and comfortable.

    I'll just sit here for a while and enjoy the sunset.

    I can remember everything now.

Saturday, November 07, 2015

Our Soap Opera

Lately we seem to be living in a never ending soap opera.
The days of our lives are overshadowed by illness and heartache. As the world turns on it's axis, we spend much of our time in the dark shadows of General Hospital. We only have one life to live, but all my children are still among the young and restless.
In last seasons episodes:
Carols C.R.S.* problems worsened, and Roberts cancer was deemed “non aggressive.”
Adam was lost in a boating accident in Alaska and Aiden swam to safety. Nicole, Aiden and Isabell moved into their new house.
David and Allison moved into a new house. David started a new job. Walker started walking.
Brad also started walking (without a cane) and passed his drivers test using hand controls. He discovered that he can run when being chased by wasps. Donna is studying at Community College and awaiting an MRI for her episode of *C.R.S.
Don and Dianna split up, dividing their kids; Austin with Don, and Shelby with Dianna. Don had a stroke and began physical therapy. Don and Austin got in a fight and Austin moved out.
Taz got a hot spot on his butt and Squeak found new neighbors to bark at.
Expect more intrigue and excitement in the next seasons episodes.

*Can't Remember Shit!

Thursday, September 24, 2015

Getting old sucks!


I've had Biopsies, Cat scans, MRI's, Echo Cardiograms, a Colonoscopy, Cystoscopy. an EGD (whatever that is) Xrays, countless blood tests and I still keep finding more things going wrong with my body.
I can't sleep on either side anymore because of arthritis in my hips, and I can't sleep on my back in bed because of apnea and snoring so loud I wake myself up, so I moved into the den and onto my recliner. It keeps my head and upper body elevated (to avoid acid reflux) and my feet elevated (for edema in my ankles and feet). Hopefully my Urologist won't advise me to elevate my junk, because my recliner won't bend that way.
I'm taking four different prescription pills, one and a half four times a day for Parkinson's, one three times a day for the nausea caused by the Parkinson's pills, and two once a day for prostate cancer. I quit taking the one for the constipation caused by the one that...Oh shit, I lost track.
I wear compression stockings, (Geezer squeezer socks) for the edema. The first time I tried putting them on I almost wiped myself out. It was like getting into a wrestling match with myself and losing! I finally found a Youtube video that showed a better way to put the damn things on. (It still ain't easy!)
I have alarm clock software in my computer that tells me when to take my pills, which I keep in a pill minder to keep track of what pills to take when the alarm goes off.
I know it could be a lot worse, I'm lucky to get around as well as I do. A lot of old timers who are hurting much more than I am will probably laugh at my meager list of complaints, but then, I'm probably not through yet!
I wrote lyrics several years ago about Parkinson's Disease; if your old enough you might remember Monty Python's “I'm a lumberjack and I'm OK.” If you don't, here's a YouTube link:

I'm a shaky guy and I don't care
I drool on my pillow here and there
My jaw wiggles every time I yawn
I'm way too tired to mow the lawn
It's quite a sight when I try to eat
My fork keeps dropping that piece of meat
Everything I say is answered by What?
My voice is a whisper I repeat a lot
My writing is tiny of this I'm sure
I can't even read my own signature
It could be worse I do know that
I just sit here in my cowboy hat
drinking red wine in my favorite chair
I'm a shaky guy and I don't care

Sunday, June 07, 2015

How To Mispronounce Colorado

I don't know when it started but somehow the pronunciation of the state name has changed. When I was a kid growing up and going to school there, everyone pronounced it Col as in doll, a as in duh, rad as in dad, o as in oh. Colorado!
    I first noticed this insidious change while watching Joe Buck announce a Bronco's game on TV. He repeatedly said Cal a raw do. I thought maybe it was just Joe Buck being ignorant as usual but when I started paying attention I realized that even the local news casters were mispronouncing it.
   Maybe since I left, (I live in Oregon now) too many Californians have moved there and changed it to Calorawdo, which is easier for them to remember.
    Don't get me started on Oar a gone!

Saturday, April 25, 2015

Egg Hunt



At our age every morning is like an Easter egg hunt.
    A leprechaun or something comes in during the night and hides, among various other things, the TV remote, slippers, one sock, dentures, our favorite coffee cups or my reading glasses, (I have three pair, one for the computer, one for reading and one for really serious things like watch repair or brain surgery.) Sometimes all three pairs get hidden, and then I'm searching with a real handicap.
    No matter what's missing, I have a search pattern that I go through with varying success – (any of the above missing items have at one time or another, been found in the following places)... dishwasher, microwave, refrigerator, refrigerator freezer, bathroom medicine cabinet, under a bed, fireplace, patio, or in one of the dogs mouths.
    Once we say “Oh screw it!” and give up the search, the leprechaun (or whatever it is) usually takes pity on us and lets us find whatever we were looking for, usually in the last place we look. (Funny how you always find things in the last place you look!)
    Oh well, it's an every day challenge and it's kind of fun!)

Saturday, March 21, 2015

Incarcerated



Don't get me wrong, over my 78 years I've been in the slammer a few times... but not lately. At least not until today!
This afternoon I went out to the greenhouse to get a seed packet, which I was going to take back in the house and tape it to a little stake so I could tell where the onion seeds I had planted were located. While I was fiddling around I heard Carol put something inside the shed that the greenhouse is attached to, and close the door. I fiddled some more and when I went to leave I discovered that she had put the screwdriver through the hasp on the door and locked me in!
I yelled and beat on the door but she'd already gone in the house. I looked at my watch...It was one o'clock. I probably could have kicked the door apart, but I remembered all the work I had done to repair it from storm damage a couple of years ago and I decided that would be a last resort.
Oh well she'll be looking for me pretty soon! I looked at my watch again, She's probably watching General Hospital and when that's over... Oh shit! It's Saturday!
I decided to make the best of it and so I swept the brick floor, cleaned out some spider webs and made sure the tomato plants were well watered. I looked at my watch again...A quarter past one.
There was an old dusty radio that I had left sitting on a shelf and I was pleasantly surprised to find that the batteries weren't completely dead and I managed to pick up a weak AM station that was playing oldies. I also found an old folding canvas camping chair, so I had tunes and a place to sit.
After sitting for a while I looked at my watch again...one thirty. I re-swept the floor and watered the tomato plants which were starting to look a little soggy, and that reminded me that I had to pee. As an avid fiction reader, I remembered that the kidnapped hostage was always given a bucket to go in. Well, I had several buckets, so that problem was solved. Now if only Carol or the dogs would come out I could try to get their attention. Several times I heard doors slamming but it was the neighbors coming and going and they were too far away to hear me.
If I'd had a Phillips screwdriver I might have been able to escape through the shed window that I had screwed shut years ago, but even my MacGiver Swiss army knife wouldn't budge the old rusted screws.
I looked at my watch...two o'clock. The radio station faded in and out while Eddie Arnold sang The Prisoner's Song. Oh if I had the wings of an angel, over these prison walls I'd fly!
I spotted a slug crawling out from under one of my newly planted tomato plants, (probably to escape form being drowned!) so I grabbed my trusty, rusty machete and murdered him. I spent the next half hour searching and hacking. (I got three.)
Back in my camping chair I looked at my watch...a quarter to three.
I watched the tomato plants but they didn't seem to be growing any. Roy Orbison was singing Only The Lonely.
At three thirty I heard one of the dogs bark so I began beating on the door to get their attention. When they heard the racket I was making they started barking in front of the door and finally I heard the screwdriver being slid out of the latch. When the door opened Carol and the dogs all looked at me like, What the hell are you doing in there? I just shook my head, went in the house and poured a glass of wine.

Thursday, January 22, 2015

Bad Wednesday



I had a scary thing happen Wednesday.
I woke up early as usual, let the dogs out, made a cup of hot cocoa and got on the computer for while. A little later I fixed some bacon and eggs and watched the news on CNN while I ate.
I started to feel some discomfort which soon turned into a major stomach ache. Gas pain! I thought and started pacing back and forth waiting for some relief. Instead it got worse. By the time Carol got up I was in agony. “I'm going to have to go to the hospital!” I told her.
Since she doesn't have a drivers license any more, I drove myself to Newport and checked in to the emergency room. Surprisingly, I got right in and a nurse began taking my vitals. I knew there wasn't anything they could do for the pain until they figured out what was wrong with me, but I was really hurting. She tapped into a vein in my skinny arm, having a little trouble with my ropy veins, and took out what seemed like a gallon of blood for the lab.
After what seemed like an eternity, a doctor Graham came in to examine me. After poking and prodding my stomach, listening to my heart and lungs and questioning me about where it hurt he decided to schedule a cat scan. “How long will I have to wait?” I asked.. To my relief he said they weren't busy and it would only be about twenty minutes. Actually, it was only about ten minutes when the cat scan operator came in, helped me into a wheel chair and rolled me to the c-scan room. She and her assistant helped me onto the table and gave me instructions about when to hold my breath and when it was OK to breathe again. They injected something into the handy gizmo the nurse had left in the vein in my arm and rolled me in and out of the machine a couple of times. A few minutes later I was in the wheelchair heading back to my bed in the ER.
The pain in my stomach was radiating through to my kidneys and it was excruciating. I had had a gallbladder go out on me before and this was similar but worse. When the nurse asked me “How bad is your pain on a scale of 1 to 10?” I told her it was an 8or 9. I figured I'd save a little in case, God forbid, it could get worse.
After another eternity the doctor came back in with a serious look on his face. “I'm afraid I have some bad news.” he said, pulling up a chair next to me. “The cat scan showed a mass in your lower stomach that I'm afraid looks very much like stomach cancer!” I felt the bottom drop out of my universe. I already have been diagnosed with prostate cancer, my mother died from stomach cancer, my brother recently died from metastasized bone cancer, and my nephew was in the hospital in Corvallis being operated on for possible Lymphoma cancer, so I certainly have the family history to make me eligible for it. The look on the doctor's face worried me as much as what he had told me. I could tell that he was really concerned.
“Doctor Larsen will be in soon and we'll go over the results of the c-scan together and get back to you.” he said getting up to leave.
“Can I have something for the pain now?” I almost yelled.
“Yes, I'll have the nurse take care of it right away!” I looked at my watch and it was after one in the afternoon.
Blessed relief! As the Dilaudid took effect I began to realize why junkies and tweakers get hooked on drugs. The pain receded and I started to feel good, actually better than good.
My wife Carol and our daughter-in-law Donna came in, and the nurse filled them in on everything. I was kind of floating above the bed, happy to see them, happy to be pain free for a while.
Soon doctor Larsen showed up and we remembered each other from a hernia repair he had performed on me about five years previously. We shook hands, he looked at what the nurse had entered into the computer and after a little poking and prodding of my stomach, he left to confer with doctor Graham.
After a short time Doctor Larsen poked his head through the curtain around my bed. “You're going to get another c-scan! This time it'll be a high contrast c-scan similar to the other one, but much easier for us to read.” In a few minutes the cat-scan lady showed up with her wheelchair and she asked me, “Did the doctor explain the difference between the high contrast c-scan and the one you had earlier?”
Not really,” I answered.
They never do.” she sighed. “Instead of injecting dye into your arm we inject it into the other end!”
Oh!” I said.
After enduring what was basically an embarrassing enema by the two nurses, I went through the c-scan with no problems, and was soon back in my ER bed. Carol and Donna were doing their best to cheer me up and then the nurse gave me another shot of Dilaudid to ease the returning pain.
I was floating again when the two doctors came in. Doctor Graham's face was covered with a big grin as he said,”We have some wonderful news for you!” Doctor Larsen asked, “How would you like to go home today?” The high contrast picture shows that it's not a cancer!” They took turns explaining that my gut has some weird twists and turns that confused the first pictures and that all I had was what boiled down to a heavy duty case of constipation.
After they left, Carol said, “You might as well get dressed so we can check out.”
I already have my clothes on!” I said.
No you don't!” Donna chuckled.
Oh!” I said.
It must have been the Dilaudid, because I didn't remember getting undressed.
While you're checking out I'll get some gas in the car and some Tylenol for dad's pain and meet you out front.” Donna said.
We made it out through the ER entrance in record time, but there was no Donna in sight. “I hope she didn't have any car trouble!” Carol said as we went back inside to get warm. When the ER receptionists looked up at us I said, “We like it so much here, we just can't leave!”
Donna drove up a few minutes later and took us home.